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HULL ĆE I OVE GODINE OBILJEŽITI 22.9. – SVJETSKI DAN KRONIČNE MIJELOIČNE LEUKEMIJE (WORLD CML DAY)

       World CML Day 2020. Today, together, more than ever. For a life without CML.   Every 22nd September, the CML Advocates Network leads the World CML Day global awareness campaign.  On this day, chronic myeloid leukemia (CML) patients across the globe come together to raise awareness about our needs to the general public, politicians, and medical professionals across the world. Today, together, more...

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HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) PRENOSI OBAVIJESTI – NAGLASKE S PREDAVANJA S 25-OG VIRTUALNOG EUROPSKOG HEMATOLOŠKOG KONGRESA (EHA) KOJE SE ODNOSE NA OBOLJELE OD KRONIČNE MIJELOIČNE LEUKEMIJE (KML)

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, EHA 2020     25th European Hematology Association Congress Highlights from sessions dedicated to Chronic Myeloid Leukemia From June 11-21 2020, the European Hematology Association (EHA) held its 25th Congress as an interactive virtual edition.  Although it is the first time since 2010 that EHA Congress has not included a Patient Advocacy Track or any specific...

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Living with CML: Toni Montserrat

  LIVING WITH CML   Patient stories to help better understand  daily life with  Chronic Myeloid Leukemia (CML)     Share Tweet Forward My name is Toni Montserrat, I'm 53 years old, happily married to Ana from 1996.  We have a 14-year-old daughter, Laia. My laptop joined our family until we agree on a friendly separation (: I worked for...

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Rezultati istraživanja TFR za KML pacijente / CML Advocates Network

  New article: Results of the TFR for CML patients' research published in Leukemia "The psychological well-being of CML patients should be a consideration of healthcare professionals and addressed at all stages of the treatment-free remission journey"   CML Advocates Network, the global network connecting 125 CML patient organisations in 93 countries, has published a paper in the prestigious journal Leukemia, considered one...

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Living with CML: Tanja Fajon

  View this email in your browser LIVING WITH CML   Patient stories to help better understand  daily life with  Chronic Myeloid Leukemia (CML)     Share Tweet Forward I am Tanja Fajon, Slovenian politician, Member of the European Parliament, former journalist and correspondent. I was diagnosed with CML some 25 years ago. Due to my excellent doctors (I am...

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HULL DONOSI OBAVIJESTI CML ADVOCATES NETWORK-a KOJI SE ODNOSI NA OBOLJELE OD KRONIČNE MIJELOIČNE LEUKEMIJE I COVID-19

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, April 2020   CML and COVID-19: New website section on cmladvocates.net  We are happy to announce the launch of a new website section to better inform the CML patient advocacy community on what is happening around Chronic Myeloid Leukemia and COVID-19 globally. Advance your knowledge on the CML and COVID-19 global situation...

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HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) DONOSI ČLANAK O NIGELU DEEKESU, OBOLJELOM OD KRONIČNE MIJELOIČNE LEUKEMIJE (KML) – NEWSLETTER CML ADVOCATES NETWORK-A

Patient stories to help better understand daily life with Chronic Myeloid Leukemia (CML) – Nigel Deekes is a patient that has been living with CML since 2011 when he was diagnosed at the age of 45. LIVING WITH CML

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CML Advocates Network, April 2020

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, April 2020   Recently published: New ELN recommendations for treating CML   We are happy to announce that the European LeukemiaNet 2020 recommendations for treating chronic myeloid leukemia have been published on March 3rd, 2020 in the journal #Leukemia.   Updates on the therapeutic landscape, treatment-free remission management, generic medicines and monitoring challenges,...

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CML Advocates Network March 2020

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, March 2020     CML Horizons 2020 conference moves to November 2020  In light of the circumstances surrounding the global COVID-19 outbreak, the CML Advocates Network Steering Committee met via video-conference yesterday to decide on the future of our annual CML Horizons conference which was due to take place in San José,...

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Coronavirus disease and CML patients

The novel Coronavirus and the COVID-19 Disease Information for Chronic Myeloid Leukemia Patients State of the Art as of 08 March 2020   Dr Michael Deininger (USA), Dr François Guilhot (France), Dr Jeroen Janssen (Netherlands), Dr Tim Hughes (Australia), Dr Jeffrey Lipton (Canada), Dr Franck Nicolini (France), Dr Jerry Radich (USA), Dr Delphine Rea (France), Dr Giuseppe Saglio (Italy), Dr...

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CML Advocates Network statement on Coronavirus Disease 2019 (COVID-19)

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, March 2020   CML Advocates Network statement on Coronavirus Disease 2019 (COVID-19)  The CML Advocates Network is closely monitoring the information concerning the Coronavirus Disease 2019 (COVID-19) worldwide. At the present time, all our activities including the CML Horizons Conference 2020 continue as planned. In the event that the situation changes, we will immediately inform...

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Living with CML: Basil Jacobs

LIVING WITH CML   Patient stories to help better understand  daily life with  Chronic Myeloid Leukemia (CML)   Basil Jacobs is 75 years old and lives in Boksburg, South Africa. He previously worked in field of procurement management but is now retired. Basil was diagnosed with CML in 2003 and he is thankfully in remission.    Basil is the co-founder of a CML...

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CML Advocates Network, February 2020

View this email in your browser For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, February 2020   Rare Disease Day 2020 Rare Disease Day takes place on the last day of February each year. The main objective is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. Rare Disease Day is a global awareness-raising campaign promoting...