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CML Advocates Network, February 2020

View this email in your browser For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, February 2020   Rare Disease Day 2020 Rare Disease Day takes place on the last day of February each year. The main objective is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. Rare Disease Day is a global awareness-raising campaign promoting...

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LIVING WITH CML – Patient stories to help better understand daily life with Chronic Myeloid Leukemia (CML)

Lisa Machado lives in Toronto, Canada. She was diagnosed with chronic myeloid leukemia in 2008, when her son Anthony was just one year old, and her daughter Grace was three. Lisa is the founder of the Canadian CML Network. She is also a journalist, writing about the challenges facing people living with cancer, but also exploring what it means to be...

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ASH 2019 Congress: CML reports

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, ASH 2019             61st American Society of Hematology Congress Chronic Myeloid Leukemia reports  In December 2019, the American Society of Hematology held its 61st Congress in Orlando, USA. The CML Advocates Network, with the help of our team of patient advocates, has summarized the chronic myeloid leukemia highlights presented in...

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CML Advocates Network, January 2020

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, January 2020       Our CML clinical trials data-base now lists 54 studies worldwide Our clinical trials registry currently lists 54 studies: 32 CML studies actively recruiting patients, including 2 paediatric trials 7 treatment-free remission trials 20 studies that are no longer recruiting We are pleased to share new trials from...

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LIVING WITH CML – Patient stories to help better understand daily life with Chronic Myeloid Leukemia (CML)

  LIVING WITH CML   Patient stories to help better understand  daily life with  Chronic Myeloid Leukemia (CML)     Share Tweet Forward This is the story of Parameswaran PS, a blood cancer (Chronic Myeloid Leukemia – CML) survivor. He was diagnosed in February 2004 and was on standard medication first-generation TKI Imatinib for CML but developed resistance and underwent a bone...

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CML News, April 2019

  For Chronic Myeloid Leukemia Patient Group Advocates cmladvocates.net   CML Advocates Network, April 2019 Looking forward to our 17th CML Horizons Conference in Lisbon, Portugal, we summarize for you the last news and activities of the CML Advocates Network. Read More   Welcome, Uruguay! We welcome a new member organisation: Asociación Uruguaya de Leucemia ASUL,  based in Uruguay. The CML Advocates Network now totals...

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CML Advocates Network Bilten: Kolovoz 2018

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CML Advocates Network Bilten: Svibanj 2018

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2018. TFR FOR CML PATIENTS SURVEY od sada i na hrvatskom jeziku!

Drage naše članice i članovi, dragi naši oboljeli od kronične mijeloične leukemije (KML), dana 19. ožujka 2018. godine smo stavili objavu o upitniku CML Advocates Network-a "TFR for CML PATIENTSURVEY“, a koju sada nadopunjujemo s upitnikom prevedenim na hrvatski jezik. Napominjemo da se radi o inicijativi da, pod određenim uvjetima, oboljeli više uopće ne bi morali uzimati lijek, a imaju...

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2018. TREATMENT-FREE REMISSION FOR CML PATIENTS SURVEY

Drage naše članice i članovi, dragi naši prijatelji i pratitelji sa kroničnom mijeloičnom leukemijom (KML) molimo Vas da ispunite upitnik CML Advocates Network-a „TFR for CML PATIENTS SURVEY“ ukoliko razmišljate tokom remisije o prestanku korištenja terapije, već ste prestali koristiti terapiju ili ste se morali vratiti na liječenje zbog komplikacija. Upitnik je anoniman a rezultate će obraditi CML Advocates Network,...

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CML Advocates Network Bilten: Veljača 2018

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Bilten za članice CML Advocates Network – Prosinac 2017.

U prilogu možete pregledati bilten CML Advocates Network-a – Prosinac 2017 sa kratkim pregledom predavanja, vijesti i aktivnosti od kojih izdvajamo: ASH 2017 – zaustavljanje liječenja: podaci i preporuke za remisiju bez terapije izvan kliničkih ispitivanja KML edukacije na ASH 2017 : zaustavljanje liječenja, kardiovaskularna toksičnost KML lijekova i iskorijenjivanje matičnih stanica leukemije Video – „Remisija bez terapije“ – govori...

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World CML Day 2017 9/22 Report

  60 CML Advocates Network members of 51 countries from all continents joined #WCMLDay17 #TodayTogether Dear CML Advocates Network members and friends, This World CML Day 2017 has been a really exciting celebration for Chronic Myeloid Leukemia community! 60 CML Advocates Network patient organisations members of 51 countries from all continents joined our global campaign "Today Together: Today, together we...