View this email in your browser LIVING WITH CML   Patient stories to help better understand  daily life with  Chronic Myeloid Leukemia (CML)     Share Tweet Forward I am Tanja Fajon, Slovenian politician, Member of the European Parliament, former journalist and correspondent. I was diagnosed with CML some 25 years ago. Due to my excellent doctors (I am...

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, April 2020   CML and COVID-19: New website section on cmladvocates.net  We are happy to announce the launch of a new website section to better inform the CML patient advocacy community on what is happening around Chronic Myeloid Leukemia and COVID-19 globally. Advance your knowledge on the CML and COVID-19 global situation...

Patient stories to help better understand daily life with Chronic Myeloid Leukemia (CML) – Nigel Deekes is a patient that has been living with CML since 2011 when he was diagnosed at the age of 45. LIVING WITH CML

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, April 2020   Recently published: New ELN recommendations for treating CML   We are happy to announce that the European LeukemiaNet 2020 recommendations for treating chronic myeloid leukemia have been published on March 3rd, 2020 in the journal #Leukemia.   Updates on the therapeutic landscape, treatment-free remission management, generic medicines and monitoring challenges,...

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, March 2020     CML Horizons 2020 conference moves to November 2020  In light of the circumstances surrounding the global COVID-19 outbreak, the CML Advocates Network Steering Committee met via video-conference yesterday to decide on the future of our annual CML Horizons conference which was due to take place in San José,...

The novel Coronavirus and the COVID-19 Disease Information for Chronic Myeloid Leukemia Patients State of the Art as of 08 March 2020   Dr Michael Deininger (USA), Dr François Guilhot (France), Dr Jeroen Janssen (Netherlands), Dr Tim Hughes (Australia), Dr Jeffrey Lipton (Canada), Dr Franck Nicolini (France), Dr Jerry Radich (USA), Dr Delphine Rea (France), Dr Giuseppe Saglio (Italy), Dr...

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, March 2020   CML Advocates Network statement on Coronavirus Disease 2019 (COVID-19)  The CML Advocates Network is closely monitoring the information concerning the Coronavirus Disease 2019 (COVID-19) worldwide. At the present time, all our activities including the CML Horizons Conference 2020 continue as planned. In the event that the situation changes, we will immediately inform...

LIVING WITH CML   Patient stories to help better understand  daily life with  Chronic Myeloid Leukemia (CML)   Basil Jacobs is 75 years old and lives in Boksburg, South Africa. He previously worked in field of procurement management but is now retired. Basil was diagnosed with CML in 2003 and he is thankfully in remission.    Basil is the co-founder of a CML...

View this email in your browser For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, February 2020   Rare Disease Day 2020 Rare Disease Day takes place on the last day of February each year. The main objective is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. Rare Disease Day is a global awareness-raising campaign promoting...

Lisa Machado lives in Toronto, Canada. She was diagnosed with chronic myeloid leukemia in 2008, when her son Anthony was just one year old, and her daughter Grace was three. Lisa is the founder of the Canadian CML Network. She is also a journalist, writing about the challenges facing people living with cancer, but also exploring what it means to be...

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, ASH 2019             61st American Society of Hematology Congress Chronic Myeloid Leukemia reports  In December 2019, the American Society of Hematology held its 61st Congress in Orlando, USA. The CML Advocates Network, with the help of our team of patient advocates, has summarized the chronic myeloid leukemia highlights presented in...

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, January 2020       Our CML clinical trials data-base now lists 54 studies worldwide Our clinical trials registry currently lists 54 studies: 32 CML studies actively recruiting patients, including 2 paediatric trials 7 treatment-free remission trials 20 studies that are no longer recruiting We are pleased to share new trials from...

  LIVING WITH CML   Patient stories to help better understand  daily life with  Chronic Myeloid Leukemia (CML)     Share Tweet Forward This is the story of Parameswaran PS, a blood cancer (Chronic Myeloid Leukemia – CML) survivor. He was diagnosed in February 2004 and was on standard medication first-generation TKI Imatinib for CML but developed resistance and underwent a bone...