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Living with CML: Jana Pelouchová

  LIVING WITH CML   Patient stories to help better understand  daily life with  Chronic Myeloid Leukemia (CML)     Share Tweet Forward - Jana Pelouchová, co-founder of the CML Advocates Network and President of Diagnoza Leukemie, Czech Republic - My name is Jana and I’m living my 19th year with CML and I’m enjoying it because last Christmas I have reached...

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CML Newsletter, February 2021

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, February 2021 More opportunity than risk: "Choosing the optimal therapy is vital for patients"   Although diagnosis and treatment methods for blood cancers have greatly improved in recent years, many are still incurable. For this reason and with the help of 94 partners and members, including seven patient organizations as well as...

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“CML-CAB News” – 3rd edition, February 2021

"CML-CAB NEWS" – 3rd edition February 2021   BYE RITA, WELCOME JERRY! End of 2020, our long-standing CML-CAB member Rita O. Christensen (CML patient and Chairman of LyLe – patient group for lymphoma, leukemia and MDS based in Denmark) decided to step down from CML-CAB and other voluntary positions for personal reasons. Rita is an engaged advocate with plenty of...

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CML Newsletter, January 2021

  For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, January 2021 ELN Recommendations 2020: patient-friendly summary now in 12 languages!   Download the Patient-friendly Summary of the ELN 2020 CML Treatment Recommendations, available now in 12 languages and more are coming: English, Spanish, Croatian, French, Polish, Romanian, Serbian, Arabic, Hebrew, Czech, German and Russian. We welcome community translations by member organisations of...

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CML Newsletter, December 2020

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, December 2020 ELN Recommendations 2020: patient-friendly summary   Download the Patient-friendly Summary of the ELN 2020 CML Treatment Recommendations, available now in 9 languages and more are coming: English, Spanish, Croatian, French, Polish, Romanian, Serbian, Arabic and Hebrew. We welcome community translations by member organisations of CML Advocates Network. If you are interested...

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HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI DONOSI PREPORUKE ZA LIJEČENJE OSOBA KOJE ŽIVE S KRONIČNOM MIJELOIČNOM LEUKEMIJOM (KML), NAJNOVIJEG DOKUMENTA IZDANOG OD STRANE CML ADVOCATES NETWORKA (CML AN), I TO NA HRVATSKOM JEZIKU

  Patient-friendly summary of 2020 ELN Guidelines for CML - Published by the CML Advocates Network - The new "European LeukemiaNet 2020 recommendations for treating chronic myeloid leukemia" were published in March 2020 in the prestigious journal Leukemia.   In order to improve the information available to patients and support them to access these guidelines, we have developed once more a patient-friendly summary...

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HULL PRENOSI OBAVIJEST CML ADVOCATES NETWORKA

For Chronic Myeloid Leukemia Patient Group Advocates Central and Eastern Europe and West Asia region,   December 2020   CML Atlas East Europe is the final product of East Europe and West Asia regional project run by the CML Advocates Network from 1st December 2019 to 31st March 2020. The activity started with a regional survey reaching our Eastern European patient members...

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HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) DONOSI OBAVIJEST O ODRŽANOJ 18-OJ (VIRTUALNOJ) KONFERENCIJI CML ADVOCATES NETWORKA KOJA SE ODNOSI NA OBOLJELE OD KRONIČNE MIJELOIČNE LEUKEMIJE (KML)

CML Horizons 2020 Virtual Conference Information   Watch videos of all sessions on demand CML Horizons Virtual Conference 2020 Almost 400 people from 87 countries all over the world registered for the 18th edition of the CML Horizons Conference which took place virtually from 6 to 8 November 2020. The annual meeting of the global CML patient advocacy community is dedicated to the...

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HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) DONOSI OBAVIJESTI O AKTIVNOSTIMA CML ADVOCATES NETWORKA – COMMUNITY ADVISORY BOARDA

Dana 12. listopada 2020. godine CML ADVOCATES NETWORK CAB održao je svoju 11. sjednicu, odnosno 1. ACADEMIC CML CAB, a sve relevantne obavijesti vezano uz novosti u liječenju kronične mijeloične leukemije, kao i video-materijale koji se na to odnose, možete pogledati u nastavku, odnosno ovdje.     Dražen Vincek "CML-CAB NEWS" – 2nd edition November 2020   NOW AVAILABLE: EXECUTIVE SUMMARY OF...

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CML Horizons Virtual Conference 2020 Day 3 Highlights

  For CML Horizons Virtual 2020 Attendees Highlights from Day 3   CML Horizons Virtual Conference 2020 We would like to share our gratitude with the global CML patient advocacy community and congratulate CML patient organisations from all regions for their amazing advocacy work supporting CML patients. During Day 3 of the CML Horizons Virtual Conference 2020, the audience connected all...

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CML Horizons Virtual Conference 2020 Day 2 Highlights

For CML Horizons Virtual 2020 Attendees Highlights from Day 2   CML Horizons Virtual Conference 2020 On Day 2 of the CML Horizons Virtual Conference 2020, the audience engaged with all speakers during the Medical #2 and Advocacy #2 sessions. Once again, over 200 attendees closely watched the most updated information on chronic myeloid leukemia presented by the key CML doctors...

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HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) SUDJELOVALA NA 18-OJ (VIRTUALNOJ) SVJETSKOJ KONFERENCIJI CML AN KOJA SE ODNOSILA NA OBOLJELE OD KRONIČNE MIJELOIČNE LEUKEMIJE (KML) – Highlights from Day 1

U vremenu od 6-8.studenog 2020. godine (petak-nedjelja), Hrvatska je, između gotovo 400 sudionika iz 87 zemalja svijeta, sudjelovala na 18-oj (virtualnoj) konferenciji CML AN, a koja se odnosila, kao i dotadašnjih 17, na oboljele od kronične mijeloične leukemije (KML), a sadržaj konferencije možete pogledati u nastavku. Dražen Vincek For CML Horizons Virtual 2020 Attendees Highlights from Day 1    ...

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CML Newsletter, October 2020

  For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, October 2020           World CML Day 2020 members' activities Online meetings, face to face events, webinars, video recordings, social media awareness campaigns, educational actions, patients' support groups and many more amazing activities have made once again the WCMLDay20 a successful awareness movement all around the globe. Thank...