Currently browsing: Međunarodne asocijacije
MPE-Logo

MPE publishes advice sheet on coronavirus (Covid-19)

  MPE publishes advice sheet on coronavirus (Covid-19)   Myeloma Patients Europe (MPE) has put together an advice sheet for our members and myeloma and AL amyloidosis patients on coronavirus (Covid-19). This advice has been reviewed by our scientific advisors and will be continually updated to reflect the latest information.  Download it here. Whilst many people will only get mild...

CML-advocates-network-logo

CML Advocates Network March 2020

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, March 2020     CML Horizons 2020 conference moves to November 2020  In light of the circumstances surrounding the global COVID-19 outbreak, the CML Advocates Network Steering Committee met via video-conference yesterday to decide on the future of our annual CML Horizons conference which was due to take place in San José,...

IAPO

HULL PRENOSI OBAVIIJEST MEĐUNARODNE ASOCIJACIJE UDRUGE PACIJENATA U VEZI PANDEMIJE COVID-19

Izjava  IAPO-a o pandemiji COVID-19 Generalni direktor Svjetske zdravstvene organizacije (WHO) proglasio je COVID-19 pandemijom. COVID-19 više nije mala epidemija koja pogađa nekoliko pacijenata i lokalnih zajednica, niti je to nacionalna epidemija koja pogađa nekoliko zemalja. Sada je prava globalna pandemija koja pogađa svaku zajednicu i zemlju. IAPO je nedržavni akter u službenim odnosima sa WHO i predstavlja pacijente širom...

Living with CML Newsletter: Joannie Clements

  Joannie lives with her husband Jerry in Costa Mesa, CA on the Pacific Coast of the USA.  She has 3 children, 5 grandchildren and 5 great grandchildren. She is retired and has been an avid CML patient advocate for over 18 years.  She founded a CML Family Support Group in 2003, which continues to operate today.  In 2019, she and her husband...

LC logo

Lymphoma Coalition Newsletter – March 2020

U prilogu možete pogledati novi Lymphoma Coalition bilten za Ožujak 2020. Lymphoma Coalition Newsletter – Ožujak 2020 CORONAVIRUS PANDEMIC

cml-advocate

Coronavirus disease and CML patients

The novel Coronavirus and the COVID-19 Disease Information for Chronic Myeloid Leukemia Patients State of the Art as of 08 March 2020   Dr Michael Deininger (USA), Dr François Guilhot (France), Dr Jeroen Janssen (Netherlands), Dr Tim Hughes (Australia), Dr Jeffrey Lipton (Canada), Dr Franck Nicolini (France), Dr Jerry Radich (USA), Dr Delphine Rea (France), Dr Giuseppe Saglio (Italy), Dr...

CML-advocates-network-logo

CML Advocates Network statement on Coronavirus Disease 2019 (COVID-19)

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, March 2020   CML Advocates Network statement on Coronavirus Disease 2019 (COVID-19)  The CML Advocates Network is closely monitoring the information concerning the Coronavirus Disease 2019 (COVID-19) worldwide. At the present time, all our activities including the CML Horizons Conference 2020 continue as planned. In the event that the situation changes, we will immediately inform...

CML-advocates-network-logo

Living with CML: Basil Jacobs

LIVING WITH CML   Patient stories to help better understand  daily life with  Chronic Myeloid Leukemia (CML)   Basil Jacobs is 75 years old and lives in Boksburg, South Africa. He previously worked in field of procurement management but is now retired. Basil was diagnosed with CML in 2003 and he is thankfully in remission.    Basil is the co-founder of a CML...

LC logo

Lymphoma Coalition 2020 Global Patient Survey – Week 6 Update

Dear Members, To date, we have received 7352 responses (patient and caregiver surveys combined) to the 2020 Global Patient Survey on Lymphomas & CLL. Thanks to everyone's hard work, we have almost reached our goal of 7500 responses! Even though we are close to goal, please continue to promote the survey. Every voice is important in ensuring the results learned from...

unnamed

ANKETE O BIOMARKERIMA

Poštovani članovi,   U nekoliko narednih dana rado ćemo s vama podijeliti drugu anketu Europske koalicije pacijenata oboljelih od raka (ECPC) o testiranju biomarkera nakon naše prve ankete iz 2016. godine (vidi priloženi infografski prikaz). Prema našoj prvoj anketi provedenoj zajedno s Europskim savezom za personaliziranu medicinu (EAPM) kako bi se izmjerila svijest pacijenata o biomarkerima širom Europe, biomarkeri su...

CML-advocates-network-logo

CML Advocates Network, February 2020

View this email in your browser For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, February 2020   Rare Disease Day 2020 Rare Disease Day takes place on the last day of February each year. The main objective is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. Rare Disease Day is a global awareness-raising campaign promoting...

CML Atlas survey

       CML Atlas           CML Advocates Network, region East Europe, is conducting a survey and your input would be appreciated. The aim of the survey is to collect data about the region regarding availability of drugs, TFR, etc. Click the button below to start the survey. Thank you for your participation!    ...

CML-advocates-network-logo

LIVING WITH CML – Patient stories to help better understand daily life with Chronic Myeloid Leukemia (CML)

Lisa Machado lives in Toronto, Canada. She was diagnosed with chronic myeloid leukemia in 2008, when her son Anthony was just one year old, and her daughter Grace was three. Lisa is the founder of the Canadian CML Network. She is also a journalist, writing about the challenges facing people living with cancer, but also exploring what it means to be...