Dear Dražen, Welcome to the June issue of our newsletter. This month, we look back at the 72nd World Health Assembly (WHA) where IAPO was well represented. A major highlight for us was the success of our side event on positioning gene and cell therapy in Universal Health Coverage. Another big moment was the commitment made by the Health Assembly to recognise patient safety...
MPE activities Myeloma Patients Europe (MPE) held the first Myeloma CAB Based on the proven CML Advocates Network and ECAB model implemented by the HIV patient community and European AIDS Treatment Group (EATG), MPE held the first myeloma CAB from 11 to 13 May in Warsaw, Poland, to promote best-in-class myeloma research as well as the harmonisation of good clinical...
S misijom nastavljanja pružanja podrške zagovaranju pacijenata (advocacy), bliske regionalne suradnje, umrežavanje udruga pacijenata koje zastupaju oboljele od kronične limfocitne leukemije (KLL) i multiplog mijeloma (MM), njihovoj edukaciji, u četvrtak i petak, 30. i 31. svibnja 2019. u hotelu Hilton Garden Inn, Bukurešt, Rumunjska održan je 5. Network4Health sastanak u organizaciji tvrtke Janssen Central & Eastern Europe. Sastanak je organiziran ...
U prilogu možete pogledati novi Lymphoma Coalition bilten za Svibanj 2019. Lymphoma Coalition Newsletter – May 2019
CML Horizons 2019., godišnji svjetski skup posvećen oboljelima od kronične mijeloične leukemije (KML), u koji je bilo uključeno sto i dvadeset dvoje (122) sudionika iz devedeset i dvije (92) zemlje iz cijelog svijeta, održan je u vremenu od 17-19. svibnja 2019. godine u mjestu Lisabon, Portugal. Medicinska i predavanja zagovornika pacijenata (patients advocacy), sa temama o tome što radi rečena...
U prilogu možete pogledati novi Lymphoma Coalition bilten za Travanj 2019. Lymphoma Coalition Newsletter – April 2019
Lymphoma Coalition Europe (LCE) u sklopu projekta "Spreading the Word" izdali su Vodič za pacijente na hrvatskom jeziku – Kutani limfom. Osnovni cilj ovog vodiča kao i samog projekta je informirati javnost i pomoći grupama pacijenata diljem Europe a sve u svrhu lakšeg razumijevanja o oboljenu, liječenju i životu sa kožnim limfomom. Kutani limfom – vodič za pacijente na hrvatskom...
U prilogu možete pogledati novi Lymphoma Coalition bilten za Ožujak 2019. Lymphoma Coalition Newsletter – March 2019
For Chronic Myeloid Leukemia Patient Group Advocates cmladvocates.net CML Advocates Network, April 2019 Looking forward to our 17th CML Horizons Conference in Lisbon, Portugal, we summarize for you the last news and activities of the CML Advocates Network. Read More Welcome, Uruguay! We welcome a new member organisation: Asociación Uruguaya de Leucemia ASUL, based in Uruguay. The CML Advocates Network now totals...
Hrvatska udruga leukemija i limfomi (HULL) postala je punopravnom članicom Myeloma Patient Europe (MPE) jednoglasnom odlukom članova Opće skupštine te organizacije donesenom na netom završenom godišnjem sastanku u Minhenu ( Myeloma Patient Europe Annual General Meeting od 15-17.3.2019.) MPE krovna je organizacija udruga pacijenata iz gotovo 30 različitih zemalja pri čemu su još mnoge udruge, ali i pojedinci te medicinski...
Dear Members, Welcome to the March issue of our newsletter. This month, we share highlights from events we attended and recent resources that you will find useful. In the last article, we invite you to share some feedback and ideas on the newsletter to ensure that it continues meeting your needs. We look forward to your thoughts. Happy reading! IAPO delegation at...
U prilogu možete pogledati novi Lymphoma Coalition bilten za Veljaču 2019. Lymphoma Coalition Newsletter – February 2019
UPDATE: Falsified Iclusig traded globally, discovered in Malaysia (new), Turkey, Switzerland, Argentina and Internet sales with UK/Ireland product batch numbers PR072875 (45mg) and 25A19E09 (15mg). Dear CML Advocates Network members, The World Health Organisation (WHO) has issued a medical product alert that falsified versions of ICLUSIG (Ponatinib) have been discovered in Turkey, Argentina and Switzerland, and in Internet sales. The...
