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HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) NA UICC (THE UNION FOR INTERNATIONAL CANCER CONTROL’S) MEMBERS DIALOGUES

Na video konferenciji UICC – The Union for International Cancer Control's (Savez za međunarodnu kontrolu raka)  Members Dialogues održanoj 20.5.2020. u nazočnosti 28 sudionika iz cijelog svijeta bilo je riječi o liječenju raka i podršci tijekom COVID-19 pandemije, te o izazovima  vođenja i upravljanju baš kao i o jačanju zdravstvenog sustava tijekom korona virusa. Glavno pitanje i tema bilo je:...

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Living with CML: Tanja Fajon

  View this email in your browser LIVING WITH CML   Patient stories to help better understand  daily life with  Chronic Myeloid Leukemia (CML)     Share Tweet Forward I am Tanja Fajon, Slovenian politician, Member of the European Parliament, former journalist and correspondent. I was diagnosed with CML some 25 years ago. Due to my excellent doctors (I am...

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HULL DONOSI OBAVIJESTI CML ADVOCATES NETWORK-a KOJI SE ODNOSI NA OBOLJELE OD KRONIČNE MIJELOIČNE LEUKEMIJE I COVID-19

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, April 2020   CML and COVID-19: New website section on cmladvocates.net  We are happy to announce the launch of a new website section to better inform the CML patient advocacy community on what is happening around Chronic Myeloid Leukemia and COVID-19 globally. Advance your knowledge on the CML and COVID-19 global situation...

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HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI SUDJELOVALA NA VIRTUALNOM SUSRETU LYMPHOMA COALITION-a, TE DONOSI KORISNE LINKOVE

COVID-19 Recommended Resources: EHA is hosting a series of webinars focused on the care of haematology patients during the COVID-19 crisis. Each week, we will be collaborating with renowned haematology professionals, who will be sharing their experiences from various perspectives and addressing key questions: Webinar 1: Addressing most urgent key questions in cancer patient care in coronavirus crisis. Webinar Session...

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HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) OBILJEŽILA SVJETSKI DAN SVJESNOSTI O AKUTNOJ MIJELOIČNOJ LEUKEMIJI (AML)

21. travnja – Dan svjesnosti o akutnoj mijeloičnoj leukemiji (AML) U povodu obilježavanja 21. travnja, Dana svjesnosti o akutnoj mijeloičnoj leukemiji (AML), Hrvatska udruga leukemija i limfomi pridružuje se obilježavanju toga Dana i u suradnji s mrežom zagovaratelja promicanja problematike akutnih leukemija ALAN (Acute Leukemia Advocates Network, www.acuteleuk.org) potiče jačanje svijesti o potrebi ranoga prepoznavanja simptoma i dijagnosticiranja akutnih leukemija....

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HULL PRENOSI OBAVIJESTI I LINKOVE ECPC-A – EUROPEAN CANCER PATIONT COALITION – The Right to Be Forgotten Project for Cancer Survivors

Dear ECPC Member, My name is Grazia Scocca and I am working as a legal researcher for the European Cancer Patient Coalition (ECPC). I am addressing you this email, because I am working on a research study on the access to financial services for cancer survivors. The research is conducted under the supervision of Dr. Françoise Meunier, oncologist, member of...

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HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) DONOSI OBAVIJESTI S WEBINARA AAMDSIF-a (APLASTIC ANEMIA & MDS INTERNATIONAL FOUNDATION)

Webinar na temu emocionalnog i fizičkog zdravlja i wellnessa održan je 14. 4. 2020. u organizaciji AAMDSIF-a (Aplastic Anemia & MDS International Foundation). O temi su govorili klinički psiholog Timothy Pearman te Jenny Finkel, certificirana yoga instruktorica i trenerica. COVID-19 pandemija donijela je mnoge promjene u naše živote. Nesigurnost, promijenjene životne navike, financijski pritisak i socijalnu izolaciju. U ovom webinaru,...

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HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) DONOSI ČLANAK O NIGELU DEEKESU, OBOLJELOM OD KRONIČNE MIJELOIČNE LEUKEMIJE (KML) – NEWSLETTER CML ADVOCATES NETWORK-A

Patient stories to help better understand daily life with Chronic Myeloid Leukemia (CML) – Nigel Deekes is a patient that has been living with CML since 2011 when he was diagnosed at the age of 45. LIVING WITH CML

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HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) DONOSI OBAVIJESTI O CAR-T TERAPIJI U LIJEČENJU LIMFOMA DANAS

CAR-T brosura – HR LC CAR-T Therapy in Lymphoma Today Final – EN Izvor: Lymphoma Coalition Autori: Sara Valente, MPharm, Lymphoma Hub Sylvia Agathou, PhD, Lymphoma Hub Lorna Warwick, Lymphoma Coalition Karen Van Rassel, Lymphoma Coalition

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Myeloma Patients Europe (MPE) Telegram channel on COVID-19

   MPE creates a Telegram channel on COVID-19   Myeloma Patients Europe (MPE) has created a Telegram channel in order to share information and resources during the COVID-19 (coronavirus) outbreak. Our aim is sharing useful information materials and resources on COVID-19 (coronavirus) and its relation to myeloma and AL amyloidosis. To join this channel, install the Telegram Messenger app and...

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CLL Advocates Network Steering Committee – “COVID-19 and CLL Patients Statement”

Dear friends of the CLL Advocates Network,   it is indeed very encouraging and inspiring to see how many of you have responded to our call and volunteered to translate our "COVID-19 and CLL Patients Statement" into your respective languages.   The Statement is now available in 10 languages: English German Spanish Czech (thank you, Jana Pelouchová, Diagnóza leukemie, Czech...

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Lymphoma Coalition 2020 GPS Final Numbers & CAR-T Toolkit

Dear Members, A quick update as the final numbers for the 2020 GPS have been tabulated, which many have been anxiously awaiting.   As well, to help members continue to support patients with lymphoma and their carers, the CAR-T toolkit is now available, accessible via the link at the bottom of this email. If you need help with local customisation,...

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Myeloma, AL amyloidosis and COVID-19

   Myeloma, AL amyloidosis and COVID-19   A new Myeloma Patients Europe (MPE) website section on COVID-19 (coronavirus) has been created for the compilation of documents being generated at national and global level on the management of myeloma and AL amyloidosis patients during the COVID-19 outbreak. Our main goal is to gather information and resources and make sure you have...