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MPE Newsletter

  MPE Annual General Meeting (AGM) 2020 Amsterdam, The Netherlands. 6-8 March 2020      MPE activities ESMO 2019 highlights The European Society for Medical Oncology (ESMO) Annual Congress was held from 27 September to 1 October 2019 in Barcelona, Spain. The only myeloma session included in the ESMO programme, called “Defining optimal response in myeloma”, summarised the most important...


CML Advocates Network appoints Denis Costello as its first ever Executive Director

    CML Advocates Network appoints Denis Costello as its first-ever Executive Director We’re proud to announce that Denis Costello has recently been appointed as the first Executive Director of the CML Advocates Network, the global umbrella organisation dedicated to empowering patient leaders in Chronic Myeloid Leukemia (CML).         About Denis Costello Denis comes to our CML...


2019 World CML Day

  2019 World CML Day       "Today, together,  for a CML free world."   Every year in 22nd September the CML patient Advocates holds the World Chronic Myeloid Leukemia (CML Day" on September 22 (9/22). This date has been chosen for global and local CML patient advocates are together focused on raising awareness of the needs of patients living with CML Day 2019 and be ready to be part of...


MPE Newsletter

View this email in your browser MPE activities 17th International Myeloma Workshop is about to kick-off in Boston, USA Led by International Myeloma Society (IMS), the 17th International Myeloma Workshop (IMW) will be held in Boston, USA, from 12 to 15 September. Myeloma Patients Europe (MPE) will be attending this important myeloma scientific congress and will regularly post updates from...


World Patient Safety Day

  7 days to World Patient Safety Day  It's just seven days until we celebrate World Patient Safety Day. Now is the time to ramp up the momentum to make sure our voice is heard on Tuesday 17th September. Thank you to everyone who has been planning activities, creating content and spreading the word. Let's keep pushing the messages out so...


First World Patient Safety Day

    'Speak up for patient safety!' First World Patient Safety Day  At IAPO we know how crucial safety is for all patients seeking healthcare. However, safety in health systems is a global concern because of increasing numbers of people suffering avoidable harm or being put at risk of injury while receiving healthcare. Recognising the urgency of the issue, on Tuesday 17...

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Lymphoma Coalition Newsletter – Summer 2019

U prilogu možete pogledati novi Lymphoma Coalition bilten za Ljeto 2019. Lymphoma Coalition Newsletter – Ljeto 2019 LC Newsletter Summer 2019


IAPO’s newsletter Srpanj 2019.

    Dear Dražen, Welcome to the July issue of our newsletter. This month, we look back at the recently updated Essential Medicines List 2019, reviewing what this means for our advocacy efforts. We also share highlights from events we attended and recent resources that you will find useful. In the last article, we invite you to share some feedback and...


HULL na WECAN akademiji u Frankfurtu 6. do 8. srpnja 2019

Predstavnica HULL-a sudjelovala je na WECAN akademiji od 6. do 8. srpnja 2019. godine u Frankfurtu. Ovo događanje  okupilo je više od 100 europskih predstavnika vodećih grupa  onkoloških i hematoloških pacijenata. Ova je akademija zamišljena kao niz predavanja i radionica za sudionike početnike i one napredne. Iako je raspored bio gust, upoznali smo se s najvažnijim načelima zagovora za prava,...


MPE Newsletter

MPE activities Survey on myeloma patient information needs in 12 countries Myeloma Patients Europe (MPE) has launched a survey for European myeloma patients to understand their information needs. If you are a myeloma patient who has received at least one prior treatment or is currently on their first treatment, MPE would be very grateful if you would take the time...


NEWSLETTER: International Alliance of Patients’ Organizations – June 2019

Dear Dražen, Welcome to the June issue of our newsletter. This month, we look back at the 72nd World Health Assembly (WHA) where IAPO was well represented. A  major highlight for us was the success of our side event on positioning gene and cell therapy in Universal Health Coverage. Another big moment was the commitment made by the Health Assembly to recognise patient safety...


MPE newsletter

MPE activities Myeloma Patients Europe (MPE) held the first Myeloma CAB Based on the proven CML Advocates Network and ECAB model implemented by the HIV patient community and European AIDS Treatment Group (EATG), MPE held the first myeloma CAB from 11 to 13 May in Warsaw, Poland, to promote best-in-class myeloma research as well as the harmonisation of good clinical...

5th CEE Network4Health Bucharest May 2019


S misijom nastavljanja pružanja podrške zagovaranju pacijenata (advocacy), bliske regionalne suradnje,  umrežavanje udruga pacijenata koje zastupaju oboljele od kronične limfocitne leukemije (KLL) i multiplog mijeloma (MM), njihovoj edukaciji,  u četvrtak i petak, 30. i 31. svibnja 2019. u hotelu Hilton Garden Inn, Bukurešt, Rumunjska održan je 5. Network4Health sastanak u organizaciji tvrtke Janssen Central & Eastern Europe. Sastanak je organiziran ...