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HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) SUDJELOVALA NA PRVOM GLOBALNOM SUMMITU AKUTNIH LEUKEMIJA (1st ACUTE LEUKEMIA GLOBAL SUMMIT 2020)

Dana 26. rujna 2020. godine (subota), u vremenu od 12:00 do 16.15 sati, u organizaciji Acute Leukemia Advocates Network-a (www.acuteleuk.org), održan je virtualni ACUTE LEUKEMIA GLOBAL SUMMIT 2020. U nastavku se nalazi link na kojem možete pronaći materijale – prezentacije i snimke sa spomenutog  Globalnog summita. https://acuteleuk.org/first-acute-leukemia-global-summit/ Dražen Vincek          

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CML Newsletter, October 2020

  For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, October 2020           World CML Day 2020 members' activities Online meetings, face to face events, webinars, video recordings, social media awareness campaigns, educational actions, patients' support groups and many more amazing activities have made once again the WCMLDay20 a successful awareness movement all around the globe. Thank...

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UICC Newsletter September 2020

UICC Newsletter September 2020 UICC launches global five-year Breast Cancer Programme    This new initiative, supported by UICC partners Pfizer, Daiichi, NIH/NCI and BHGI, aims to assist 50,000 patients and train 170 organisations and 5,000 health professionals in advocacy, communications, fundraising and monitoring.   Read more   Looking back at two enriching years as UICC President As her tenure comes to...

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Thank you for your involvement in World CML Day 2020

    Chronic myeloid leukemia patients connect worldwide on  World CML Day, September 22nd "One day, one community, one life changing reality. Today, together, more than ever, we are united to take a stand, share our needs and raise #CML awareness." TodayTogether MoreThanEver     9/22         Thank you for your involvement in World CML Day 2020!   The...

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Statistika u povodu 4. rujna, Svjetskog dana leukemije

  Statistika u povodu 4. rujna, Svjetskog dana leukemije (podaci prema istraživanju koje je proveo YouGov)   U prosjeku 10 % svjetske javnosti nije čulo za leukemiju. U prosjeku 14 % svjetske javnosti ne zna da je leukemija rak. U prosjeku 64 % svjetske javnosti ne bi otišlo liječniku zbog bolova u kostima i zglobovima. U prosjeku 67 % svjetske...

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UICC Newsletter – August 2020

          www.uicc.org         Share                   UICC Newsletter August 2020 A historic milestone in the global movement to eliminate cervical cancer   The adoption of WHO's Global Strategy will help save millions of lives from a preventable cancer. UICC is providing members with resources to communicate...

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The CLL Advocates Network´s Newsletter – August 2020

  CLL Matters The CLL Advocates Network´s Newsletter WELCOME BY OUR CHAIR It is my pleasure to welcome you to the 1st issue of “CLL Matters” – the CLL Advocates Network´s Newsletter (CLLAN). The CLLAN Steering committee recognises the immense pressure of increased demands and reduced services the COVID-19 pandemic has caused our community. It is our hope that –...

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CML Newsletter August 2020

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, August 2020 September 2020 is approaching fast and the patient advocacy community worldwide have important dates to look forward to: Blood Cancer Awareness Month This is an international event taking place each September to raise awareness of blood cancers and disorders, and the incredible second chance at life that blood stem cell donors give to those...

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HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) DONOSI ANKETU EUROPEAN CANCER PATIENT COALITION (ECPC) SA ZAMOLBOM ZA UKLJUČENJEM

Istraživanjem „Mapiranje članica EU na COVID-19 pandemiju i karcinom“ željeli bismo vidjeti učinak koji je COVID-19 imao na pacijente oboljele od karcinoma i njihovo liječenje u cijeloj Europi. Prikupljene informacije će nam pružiti temeljit i opsežan pregled kako su oboljeli od karcinoma bili afektirani tijekom ove pandemije i omogućiti nam da nastavimo pružati potporu oboljelima tijekom pandemije. Tražimo širok spektar...

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HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) DONOSI IZVJEŠĆE S WEBINARA ODRŽANOG U ORGANIZACIJI MDS ALLIANCE NA KOJEM JE DR. MARY K. HUGHES GOVORILA O SUOČAVANJU SA STRAHOM OD POVRATKA BOLESTI

Dana 7. srpnja 2020. u organizaciji MDS Alliance održan je webinar na kojem je dr. Mary K. Hughes govorila o suočavanju sa strahom od povratka bolesti. Bolest utječe na odnose s ljudima (u obitelji i šire), na spoznajno, emocionalno i duhovno područje, na ponašanje, sliku o tijelu, kvalitetu života, samostalnost, seksualno funkcioniranje… Najčešći izvor stresa oboljelih je strah, briga da...

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HULL ĆE I OVE GODINE OBILJEŽITI 22.9. – SVJETSKI DAN KRONIČNE MIJELOIČNE LEUKEMIJE (WORLD CML DAY)

       World CML Day 2020. Today, together, more than ever. For a life without CML.   Every 22nd September, the CML Advocates Network leads the World CML Day global awareness campaign.  On this day, chronic myeloid leukemia (CML) patients across the globe come together to raise awareness about our needs to the general public, politicians, and medical professionals across the world. Today, together, more...

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Now, more than ever, we need international action on rare diseases

The Voice of Rare Disease Patients in Europe Making universal health coverage a reality for people living with a rare disease The current pandemic underscores the importance of ensuring universal health coverage (UHC) for everyone, including people affected by rare diseases. In 2019, UN Member States committed to UHC that is inclusive of rare diseases. Now it is time to...

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NEWSLETTER: International Alliance of Patients’ Organizations – July

      Dear Dražen, Welcome to the July issue of our newsletter. This month, we look ahead to our re-imagined 9th Global Patients Congress now taking place as a virtual event on 16 and 17 September 2020 and share further information. We continue to update our COVID-19 Resources Hub to keep you informed on key topics related to COVID-19,...