'Speak up for patient safety!' First World Patient Safety Day  At IAPO we know how crucial safety is for all patients seeking healthcare. However, safety in health systems is a global concern because of increasing numbers of people suffering avoidable harm or being put at risk of injury while receiving healthcare. Recognising the urgency of the issue, on Tuesday 17...

U prilogu možete pogledati novi Lymphoma Coalition bilten za Ljeto 2019. Lymphoma Coalition Newsletter – Ljeto 2019 LC Newsletter Summer 2019

    Dear Dražen, Welcome to the July issue of our newsletter. This month, we look back at the recently updated Essential Medicines List 2019, reviewing what this means for our advocacy efforts. We also share highlights from events we attended and recent resources that you will find useful. In the last article, we invite you to share some feedback and...

Predstavnica HULL-a sudjelovala je na WECAN akademiji od 6. do 8. srpnja 2019. godine u Frankfurtu. Ovo događanje  okupilo je više od 100 europskih predstavnika vodećih grupa  onkoloških i hematoloških pacijenata. Ova je akademija zamišljena kao niz predavanja i radionica za sudionike početnike i one napredne. Iako je raspored bio gust, upoznali smo se s najvažnijim načelima zagovora za prava,...

MPE activities Survey on myeloma patient information needs in 12 countries Myeloma Patients Europe (MPE) has launched a survey for European myeloma patients to understand their information needs. If you are a myeloma patient who has received at least one prior treatment or is currently on their first treatment, MPE would be very grateful if you would take the time...

Dear Dražen, Welcome to the June issue of our newsletter. This month, we look back at the 72nd World Health Assembly (WHA) where IAPO was well represented. A  major highlight for us was the success of our side event on positioning gene and cell therapy in Universal Health Coverage. Another big moment was the commitment made by the Health Assembly to recognise patient safety...

MPE activities Myeloma Patients Europe (MPE) held the first Myeloma CAB Based on the proven CML Advocates Network and ECAB model implemented by the HIV patient community and European AIDS Treatment Group (EATG), MPE held the first myeloma CAB from 11 to 13 May in Warsaw, Poland, to promote best-in-class myeloma research as well as the harmonisation of good clinical...

S misijom nastavljanja pružanja podrške zagovaranju pacijenata (advocacy), bliske regionalne suradnje,  umrežavanje udruga pacijenata koje zastupaju oboljele od kronične limfocitne leukemije (KLL) i multiplog mijeloma (MM), njihovoj edukaciji,  u četvrtak i petak, 30. i 31. svibnja 2019. u hotelu Hilton Garden Inn, Bukurešt, Rumunjska održan je 5. Network4Health sastanak u organizaciji tvrtke Janssen Central & Eastern Europe. Sastanak je organiziran ...

U prilogu možete pogledati novi Lymphoma Coalition bilten za Svibanj 2019. Lymphoma Coalition Newsletter – May 2019

CML Horizons 2019.,  godišnji svjetski skup posvećen oboljelima od kronične mijeloične leukemije (KML), u koji je bilo uključeno sto i dvadeset dvoje (122) sudionika iz devedeset i dvije (92) zemlje iz cijelog svijeta, održan je u vremenu od 17-19. svibnja 2019. godine u mjestu Lisabon, Portugal. Medicinska i predavanja zagovornika pacijenata (patients advocacy), sa temama o tome što radi rečena...

U prilogu možete pogledati novi Lymphoma Coalition bilten za Travanj 2019. Lymphoma Coalition Newsletter – April 2019

Lymphoma Coalition Europe (LCE) u sklopu projekta "Spreading the Word" izdali su Vodič za pacijente na hrvatskom jeziku – Kutani limfom. Osnovni cilj ovog vodiča kao i samog projekta je informirati javnost i pomoći grupama pacijenata diljem Europe a sve u svrhu lakšeg razumijevanja o oboljenu, liječenju i životu sa kožnim limfomom. Kutani limfom – vodič za pacijente na hrvatskom...

Welcome to the April issue of our newsletter. This month, we look ahead to the 72nd World Health Assembly (WHA) through the first part of our WHA series. We also highlight the recently published 2019 World Health Statistics which for the first time has its data split along gender lines resulting in very relevant findings. Lastly, we invite you to save the date...