U prilogu možete pogledati novi Lymphoma Coalition bilten za Veljaču 2019. Lymphoma Coalition Newsletter – March 2019

  For Chronic Myeloid Leukemia Patient Group Advocates cmladvocates.net   CML Advocates Network, April 2019 Looking forward to our 17th CML Horizons Conference in Lisbon, Portugal, we summarize for you the last news and activities of the CML Advocates Network. Read More   Welcome, Uruguay! We welcome a new member organisation: Asociación Uruguaya de Leucemia ASUL,  based in Uruguay. The CML Advocates Network now totals...

Hrvatska udruga leukemija i limfomi (HULL) postala je punopravnom članicom Myeloma Patient Europe (MPE) jednoglasnom odlukom članova Opće skupštine te organizacije donesenom na netom završenom godišnjem sastanku u Minhenu ( Myeloma Patient Europe Annual General Meeting od 15-17.3.2019.) MPE krovna je organizacija udruga pacijenata iz gotovo 30 različitih zemalja pri čemu su još mnoge udruge, ali i pojedinci te medicinski...

Dear Members, Welcome to the March issue of our newsletter. This month, we share highlights from events we attended and recent resources that you will find useful. In the last article, we invite you to share some feedback and ideas on the newsletter to ensure that it continues meeting your needs. We look forward to your thoughts. Happy reading! IAPO delegation at...

U prilogu možete pogledati novi Lymphoma Coalition bilten za Veljaču 2019. Lymphoma Coalition Newsletter – February 2019

UPDATE: Falsified Iclusig traded globally, discovered in Malaysia (new), Turkey, Switzerland, Argentina and Internet sales with UK/Ireland product batch numbers PR072875 (45mg) and 25A19E09 (15mg). Dear CML Advocates Network members, The World Health Organisation (WHO) has issued a medical product alert that falsified versions of ICLUSIG (Ponatinib) have been discovered in Turkey, Argentina and Switzerland, and in Internet sales. The...

      The 144th Session of the WHO Executive Board Momentum on Global Action for Patient Safety continues to build On 31 January 2019, the 144th session of the WHO Executive Board (EB) deliberated on the agenda item ‘Global Action on Patient Safety’ and adopted the Executive Board Resolution ‘Global Action on Patient Safety’ which includes the establishment of an...

The Acute Leukemia Advocates Network (ALAN) provodi globalnu anketu kako bi procijenila kvalitetu života pacijenata s akutnom leukemijom. ALAN je mreža koja okuplja organizacije pacijenata oboljelih od akutne leukemije iz cijelog svijeta. Trenutno postoje vrlo ograničeni podaci o kvaliteti života bolesnika s akutnom leukemijom. Cilj istraživanja je generiranje novih rezultata kroz prikupljanje informacija o iskustvima u liječenju i kvaliteti života...

U prilogu možete pogledati novi Lymphoma Coalition bilten za Siječanj 2019. Lymphoma Coalition Newsletter – January 2019

      IAPO's Strategic Plan 2019 - 2021 IAPO's Strategic Plan 2019 - 2021 is now in effect. This strategy builds on the progress made through the Strategic Plan 2015 – 2017 and sets out our vision of promoting patient-centric universal health coverage in 2019 – 2021 (and beyond to 2030). Our plan objectives are to ensure that there is: "sufficient availability of patient-centric, quality and safe, promotive, preventive,...

  Horizon2020 MMPredict video on personalised medicine tools for myeloma patients now available in five languages   Myeloma Patients Europe (MPE) is participating in the Horizon 2020 project, MMPredict, aimed to develop a personalised medicine tool to predict the most effective treatment strategy for individual myeloma patients. To explain the main goals ofMMPredict, MPE filmed a video with some partners working in the...

  Achieving safer healthcare and medication for all: The world unites for PSD2018 Patient Solidarity Day has come and gone and we couldn’t be more pleased with the results. Our goal this year was to elevate the momentum in the conversation on safe healthcare and we are excited to see patient safety continue to receive global prioritisation and look forward to...

U prilogu možete pogledati novi Lymphoma Coalition bilten za Prosinac 2018. Lymphoma Coalition Newsletter – December 2018