Today is World CML Day! 20 years of life-changing CML therapies, but worldwide access is still needed.   Every 22nd September, the CML Advocates Network leads the World CML Day global awareness campaign.  Today is a day that unites people, communities and entire countries to raise awareness and take action. Join the global awareness   9/22 22 September 2021   This year marks the...

Hrvatska udruga leukemija i limfomi (HULL) višegodišnja je članica CLL ADVOCATES NETWORK-a, međunarodne asocijacije koja okuplja udruge pacijenata kao i oboljele od kronične limfocitne leukemije (KLL). Dana 1. rujna 2021. diljem svijeta obilježit će se Svjetski dan kronične limfocitne leukemije, jedne od hematoloških bolesti a HULL okuplja oboljele od te bolesti, kao i članove njihovih obitelji, skrbnike i prijatelje, te...

Dana 29. lipnja 2021. godine (utorak) u organizaciji ECPC-a (Europske udruge pacijenata oboljelih od raka) održan je online događaj pod nazivom „20 Million Reasons to Discuss Life After Cancer: Establishing a European Survivorship Day“, koji je bio usmjeren ka podizanju svijesti o podizanju svjesnosti o pravima oboljelih od raka u Europskoj uniji i formalizaciji određivanja Europskog dana preživljavanja od raka....

    UICC 2020 Annual Report now available   Access the report Dear UICC family and members of our community,    What an unprecedented year 2020 has been for UICC members and partners, as individuals and organisations around the world have struggled through the pandemic. In its work, the UICC team in Geneva has consistently been inspired by their resilience...

Hrvatska udruga leukemija i limfomi (HULL) članica je međunarodne asocijacije MDS Alliance, koja je postigla ključni cilj 2021. prevođenjem webinara u vidu videozapisa usmjerenih na pacijenta, i to s engleskog pomoću titlova na, ograničeno, devet svjetskih jezika: španjolski, talijanski, francuski, kineski (mandarinski), hindu, turski, grčki, srpski i poljski. Prevedeni webinari su dostupni za gledanje na web mjestu MDS Alliance i...

  An EU Cancer Survivorship Day becoming a reality This year’s webinar ECPC’s event on life after cancer sought to provide an impetus for the formal establishment of an annual EU Cancer Survivorship Day, following the example of several national cancer survivorship days which bring together communities worldwide to recognise survivors and the challenges they face and celebrate life after cancer. The Challenge...

Assessment of the needs of patient organisations during the COVID-19 pandemic   As the SARS-CoV-2 (COVID-19) pandemic unfolded in 2020, Myeloma Patients Europe (MPE) became aware that the pandemic, as well as the restrictions imposed, were impacting the healthcare and lives of people with myeloma and AL amyloidosis, and their caregivers in multiple ways. The crisis also brought unique challenges to our member...

Hrvatska udruga leukemija i limfomi (HULL) punopravna je članica Myeloma Patients Europe (MPE). Dana 2. srpnja 2021. godine (subota), u vremenu od 13.00-17.00 sati i dana 3. srpnja 2021. godine, u vremenu od 9.00 do 17.00 sati obilježena je 10-godišnjica Myeloma Patients Europe ( MPE) i Masterclass, i to u virtualnom obliku.  Na rečenom obilježavanju je bilo više od 100...

A MESSAGE FROM LORNA LATEST NEWS & RESEARCH COALITION COMMUNITY TOP ACADEMIC ARTICLES   A Message from Lorna:  Dear Members, 2021 is a still a year of uncertainty as the world continues to navigate through the impact of the pandemic.  What is certain is that we are stronger together.  The theme for the 2021 Global Summit is Innovation, Speed and Flexibility. The...

Conference Highlights   Two significant conferences for the oncology and hematology research communities took place this month and each featured important content on MPNs.   At the American Society of Clinical Oncology's (ASCO) 2021 Annual Meeting, the MPN research presented included updates on several significant clinical trials for MF, including SIMPLIFY-1 (Momelotinib, Sierra Oncology) and BOREAS (KRT-232, Kartos Therapeutics). BOREAS is a new phase 3 study designed...

UICC monthly news June 2021 Effective cancer control and Universal Health Coverage go hand-in-hand Five million cancer-related deaths in 2020 might have been avoided with easier and more timely access to health services. In an opinion piece for Project Syndicate, UICC President Prof. Anil D’Cruz explains what actions can be taken to overcome inequities in health care and save lives....

  UICC Newsletter May 2021 Antimicrobial resistance (AMR): a major threat to effective cancer treatments As pathogens become ever more resistant to antimicrobial drugs such as antibiotics, people living with cancer run a growing risk of adverse treatment outcomes, including death from an infection, even though their cancer is treatable. UICC is collaborating with members and partners to increase awareness...

LÖSEV – Foundation for Children with Leukemia is a non-profit and non-governmental organization which provides medical, financial and psychosocial support to children affected by leukemia and other childhood cancers. We have been providing support to more than 47.000 children with leukemia and cancer, adult cancer patients and their families since 1998. Our primary goal is to provide permanent treatment and...