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The 2020 LC Global Patient Survey on Lymphomas and CLL is now LIVE

You can find the survey link on our website, here: www.lymphomacoalition.org/GPS2020.  We appreciate your patience as we worked through some final translation edits.  As a reminder, the survey is available in 19 languages: Arabic Finnish Japanese Serbian Bulgarian French Korean Slovakian Chinese German Lithuanian Spanish Dutch Hindi Portuguese Swedish English Italian Punjabi     Please ask your membership, patients and caregivers/family/friends...

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LIVING WITH CML – Patient stories to help better understand daily life with Chronic Myeloid Leukemia (CML)

  LIVING WITH CML   Patient stories to help better understand  daily life with  Chronic Myeloid Leukemia (CML)     Share Tweet Forward This is the story of Parameswaran PS, a blood cancer (Chronic Myeloid Leukemia – CML) survivor. He was diagnosed in February 2004 and was on standard medication first-generation TKI Imatinib for CML but developed resistance and underwent a bone...

IAPO

IAPO 2019 newsletter

Dear Dražen, Welcome to the final issue of the IAPO 2019 newsletter. Thank you to everyone who took part in making 2019 an excellent year for all of us at IAPO. Some of our highlights include; the establishment of the first ever World Patient Safety Day in May and its marking in September, the IAPO governance framework reviewin June, our first ever Regional Asia Pacific Patients Congress in November...

IAPO

Patient Solidarity Day

Speaking up for safe patient-centred UHC Join us tomorrow as we call for our leaders to keep their promise to address global patient safety in a concerted manner and accelerate progress for safe patient-centred universal health coverage (UHC). This is based on our belief that every person, no matter who they are or where they live, should be able to get the quality health...

Lymphoma coalition

Lymphoma Coalition Newsletter – November 2019

U prilogu možete pogledati novi Lymphoma Coalition bilten za Ljeto 2019. Lymphoma Coalition Newsletter – Ljeto 2019 LC Newsletter November 2019

PatientSolidarity

Patient Solidarity Day 06/12/2019

#PSD2019 Calling for action on commitments made This year, all World Health Organization's Member States are on record as having adopted two ambitious and comprehensive commitments: 24th May 2019 : The World Health Organization Member States unanimously adopted Resolution 72.6 global action on patient safety in Geneva to address global patient safety in a concerted manner. 23rd September 2019: The United Nations General...

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EUROPEAN PATIENT INNOVATION SUMMIT (EPIS), Zagreb, 6.-7.11.2019.

European Patient Innovation Summit (EPIS), godišnji sastanak s međunarodnim sudjelovanjem posvećen pacijentima, u organizaciji tvrtke Novartis Hrvatska d.o.o., Radnička cesta 37b, Zagreb, održan je od 6.-7. studenoga  2019. godine (srijeda i četvrtak) u zagrebačkom hotelu Hilton Garden Inn, Radnička cesta 21, a na ovogodišnjem EPIS-u se ponovno su se okupili predstavnici udruga iz BiH, Srbije i Hrvatske. Skup je održan...

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For Chronic Myeloid Leukemia Patient Group Advocates, CML Advocates Network, November 2019

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, November 2019     The 9th CML-CAB is just around the corner!   On 20 November 2019, 11 expert patient advocates from all continents will meet in Basel / Switzerland for a CML-CAB with Novartis. We are proud to announce that Susanna Schaffert, President of Novartis Oncology, has accepted our invitation to join this 4-hour CAB-meeting.   The...

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MPE Newsletter

  MPE Annual General Meeting (AGM) 2020 Amsterdam, The Netherlands. 6-8 March 2020      MPE activities ESMO 2019 highlights The European Society for Medical Oncology (ESMO) Annual Congress was held from 27 September to 1 October 2019 in Barcelona, Spain. The only myeloma session included in the ESMO programme, called “Defining optimal response in myeloma”, summarised the most important...

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CML Advocates Network appoints Denis Costello as its first ever Executive Director

    CML Advocates Network appoints Denis Costello as its first-ever Executive Director We’re proud to announce that Denis Costello has recently been appointed as the first Executive Director of the CML Advocates Network, the global umbrella organisation dedicated to empowering patient leaders in Chronic Myeloid Leukemia (CML).         About Denis Costello Denis comes to our CML...

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2019 World CML Day

  2019 World CML Day       "Today, together,  for a CML free world."   Every year in 22nd September the CML patient Advocates holds the World Chronic Myeloid Leukemia (CML Day" on September 22 (9/22). This date has been chosen for global and local CML patient advocates are together focused on raising awareness of the needs of patients living with CML Day 2019 and be ready to be part of...

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MPE Newsletter

View this email in your browser MPE activities 17th International Myeloma Workshop is about to kick-off in Boston, USA Led by International Myeloma Society (IMS), the 17th International Myeloma Workshop (IMW) will be held in Boston, USA, from 12 to 15 September. Myeloma Patients Europe (MPE) will be attending this important myeloma scientific congress and will regularly post updates from...

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World Patient Safety Day

  7 days to World Patient Safety Day  It's just seven days until we celebrate World Patient Safety Day. Now is the time to ramp up the momentum to make sure our voice is heard on Tuesday 17th September. Thank you to everyone who has been planning activities, creating content and spreading the word. Let's keep pushing the messages out so...