Currently browsing: Međunarodne asocijacije
uicc

UICC Newsletter – May 2020

… UICC Newsletter May 2020   Protect a new generation from the tactics of the tobacco industry As the world marks World No Tobacco Day on 31st May, UICC expresses concern at the rise in prevalence of youth vaping and calls for the strict regulation of e-cigarettes. Read more UICC’s Virtual Dialogues: a new suite of innovative online services for members...

uicc

Register for UICC Member Dialogue on Tuesday 26th May at 13:00 CEST

    Dear UICC member,   Last Wednesday, UICC hosted the first Member Dialogue as part of the new Virtual Dialogues series, and two more are planned this week and next. We would like to make sure that you don’t miss the chance of joining the discussion.   In the first Member Dialogue, UICC members shared their experiences in three areas: cancer services...

uicc

UICC’s Virtual Dialogues: a new suite of online services for members

            Dear UICC members,   The cancer community is facing a wide range of challenges in its ability to come together and deliver its work, due to the shifting global dynamics. The coronavirus pandemic is placing huge demands on our resilience – whether personal, organisational or at the health system level – and UICC’s role...

logo-eurordis

5.1 million people across Europe are living with a rare cancer

The Voice of Rare Disease Patients in Europe New European recommendations on rare cancers There are an estimated 5.1 million people living with a rare cancer across Europe and 200 types of rare cancers. The rare disease community and the rare cancer community are sometimes regarded as two different worlds. But this is far from the reality, as patients and...

uicc

Join our Special Focus Dialogue on Leadership and self-management this Thursday 11th June at 13:00 CEST

    Dear UICC member,   With the outbreak of COVID-19, many organisations have had to adapt to different ways of organising their work, managing their teams and delivering their services. From adopting remote working to exploring online ways to collaborate, organisational models have become more decentralised and agile, while staff and teams have had to learn how to be more autonomous and...

LC logo

HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) SUDJELOVALA NA WEBINARU WORLD LYMPHOMA COALITION-A (WLAD)

WLAD kampanja ili obilježavanje Svjetskog dana svjesnosti o limfomima 15.9. 2020. biti će oblikovana kao jednostavna kampanja podrške udrugama/grupama koje podupiru pacijente oboljele od limfoma, rečeno je na webinaru World Lymphome Coalition-a održanom 9.6.2020. godine. Zaokret je to od prvotno najavljene kampanje s nazivom „Otkrij svoj podtip“ koja je trebala proširiti svjesnost o nedovoljnom poznavanju čak 80 podtipova limfoma u...

CML-advocates-network-logo

Rezultati istraživanja TFR za KML pacijente / CML Advocates Network

  New article: Results of the TFR for CML patients' research published in Leukemia "The psychological well-being of CML patients should be a consideration of healthcare professionals and addressed at all stages of the treatment-free remission journey"   CML Advocates Network, the global network connecting 125 CML patient organisations in 93 countries, has published a paper in the prestigious journal Leukemia, considered one...

uicc

HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) NA UICC (THE UNION FOR INTERNATIONAL CANCER CONTROL’S) MEMBERS DIALOGUES

Na video konferenciji UICC – The Union for International Cancer Control's (Savez za međunarodnu kontrolu raka)  Members Dialogues održanoj 20.5.2020. u nazočnosti 28 sudionika iz cijelog svijeta bilo je riječi o liječenju raka i podršci tijekom COVID-19 pandemije, te o izazovima  vođenja i upravljanju baš kao i o jačanju zdravstvenog sustava tijekom korona virusa. Glavno pitanje i tema bilo je:...

CML-advocates-network-logo

Living with CML: Tanja Fajon

  View this email in your browser LIVING WITH CML   Patient stories to help better understand  daily life with  Chronic Myeloid Leukemia (CML)     Share Tweet Forward I am Tanja Fajon, Slovenian politician, Member of the European Parliament, former journalist and correspondent. I was diagnosed with CML some 25 years ago. Due to my excellent doctors (I am...

cml-advocate

HULL DONOSI OBAVIJESTI CML ADVOCATES NETWORK-a KOJI SE ODNOSI NA OBOLJELE OD KRONIČNE MIJELOIČNE LEUKEMIJE I COVID-19

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, April 2020   CML and COVID-19: New website section on cmladvocates.net  We are happy to announce the launch of a new website section to better inform the CML patient advocacy community on what is happening around Chronic Myeloid Leukemia and COVID-19 globally. Advance your knowledge on the CML and COVID-19 global situation...

LC logo

HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI SUDJELOVALA NA VIRTUALNOM SUSRETU LYMPHOMA COALITION-a, TE DONOSI KORISNE LINKOVE

COVID-19 Recommended Resources: EHA is hosting a series of webinars focused on the care of haematology patients during the COVID-19 crisis. Each week, we will be collaborating with renowned haematology professionals, who will be sharing their experiences from various perspectives and addressing key questions: Webinar 1: Addressing most urgent key questions in cancer patient care in coronavirus crisis. Webinar Session...

ALAN-logo

HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) OBILJEŽILA SVJETSKI DAN SVJESNOSTI O AKUTNOJ MIJELOIČNOJ LEUKEMIJI (AML)

21. travnja – Dan svjesnosti o akutnoj mijeloičnoj leukemiji (AML) U povodu obilježavanja 21. travnja, Dana svjesnosti o akutnoj mijeloičnoj leukemiji (AML), Hrvatska udruga leukemija i limfomi pridružuje se obilježavanju toga Dana i u suradnji s mrežom zagovaratelja promicanja problematike akutnih leukemija ALAN (Acute Leukemia Advocates Network, www.acuteleuk.org) potiče jačanje svijesti o potrebi ranoga prepoznavanja simptoma i dijagnosticiranja akutnih leukemija....

ecpc-logo

HULL PRENOSI OBAVIJESTI I LINKOVE ECPC-A – EUROPEAN CANCER PATIONT COALITION – The Right to Be Forgotten Project for Cancer Survivors

Dear ECPC Member, My name is Grazia Scocca and I am working as a legal researcher for the European Cancer Patient Coalition (ECPC). I am addressing you this email, because I am working on a research study on the access to financial services for cancer survivors. The research is conducted under the supervision of Dr. Françoise Meunier, oncologist, member of...