LIVING WITH CML – Patient stories to help better understand daily life with Chronic Myeloid Leukemia (CML)

 

LIVING WITH CML

 

Patient stories to help better understand 
daily life with 

Chronic Myeloid Leukemia (CML)

   

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This is the story of Parameswaran PS, a blood cancer (Chronic Myeloid Leukemia – CML) survivor.

He was diagnosed in February 2004 and was on standard medication first-generation TKI Imatinib for CML but developed resistance and underwent a bone marrow transplant in November 2006.

He lives a life of "Dignity and Hope". He shares his testimony of hope, faith and trust that helped him to cope with CML.

He is a trustee with Friends of Max, a patient support group organization for CML & GIST (Gastro-Intestinal Stomach Tumor) patients and their caregivers. Param is also a member of the CML Community Advisory Board representing the Asian region.

He represents India and hails from the south of India belonging to the state of Karnataka and lives in the city of Bangalore. He volunteers for various cancer care activities in his region. 

Parameswaran PS holds a bachelor’s degree in Chemical Engineering with a Supply Chain Management Master. He is an experienced Senior-level Executive in Operations & Supply Chain Management in Pharma and Life sciences. 

Parameswaran PS lives in Bangalore with his family: his wife Ramalakshmi and two daughters, Sangeetha and Swetha.

Param with his daughters
Param advocating for CML
My story living with CML begins in February 2004, when as part of the annual routine check-up I was diagnosed with chronic myeloid leukaemia. The routine blood test is part of the annual medical check-up at the place of my work where it got diagnosed. There were no symptoms at all and if not for the routine blood check up it would have gone unnoticed.

My initial reaction to the diagnosis was shocking and my career was at its peak then and was handling critical projects. But I realized that my body was affected, not my mind and soul, and that is wherein found my wisdom and strength.

On initial diagnosis, I decided along with my wife not to lose hope. Yes, it was shocking to get a disease of this dimension and intensity but wisdom prevailed in me as basically being resilient with my emotion. I developed this strong hope and faith that my mind and soul do not have CML. That increased the confidence to fight this disease.

Thereafter I was more blessed to see there are medicines to keep this disease under control which further enhanced the confidence to fight the disease out.  Along with the above I was introduced to patients having CML and their testimonials further strengthened my hope and faith in coping with the disease. Cancer brings financial, and emotional fears for all those who get diagnosed.

This is a vicious cycle and either all or one of them causes stress to patients and caregivers. Here most of the battle is fought on losing ground.