CML Newsletter, December 2020

For Chronic Myeloid Leukemia Patient Group Advocates

CML Advocates Network, December 2020

ELN Recommendations 2020: patient-friendly summary

 

Download the Patient-friendly Summary of the ELN 2020 CML Treatment Recommendations, available now in 9 languages and more are coming: English, Spanish, Croatian, French, Polish, Romanian, Serbian, Arabic and Hebrew.

We welcome community translations by member organisations of CML Advocates Network. If you are interested in getting a translation to your language, please, contact us at info@cmladvocates.net.

Download the ELN 2020 patient-friendly summary
 

Update on treatment-free remission

 

If you missed the live webinar "Update on Treatment-Free Remission" run by the International CML Foundation (iCMLf), now you can watch it on their website.
Professor Timothy Hughes and our co-founder Giora Sharf discussed topics like:

• ELN/NCCN recommendations for TFR
• Early BCR-ABL1 kinetics predictive for TFR
• Probability of sustained TFR based on halving time
• Precision medicine approach in CML
• TFR for CML patients' study: Phases of TFR and results from the global survey.

The video finished with a very interesting "Question and Answers" section.

Watch the iCMLf video on Treatment-Free Remission
 
 

Our CMLCAB Abstract published in the OJRD Supplement

Orphanet Journal of Rare Diseases (OJRD), which is the official journal of Orphanet, the portal for rare diseases and orphan drugs, has recently published a special supplement featuring over 50 selected poster and speaker presentation abstracts from the 10th European Conference on Rare Diseases & Orphan Products (ECRD 2020).

This journal, published by BioMed Central, is an open access online journal focused on rare diseases and orphan products and publishes high-quality reviews on specific topics.
Our Abstract "CML Advocates Network implementation of the Community Advisory Board (CAB) model" has been included as part of this collection as P28 (page 17).

Find out more in the OJRD Supplement: 10th European Conference on Rare Diseases & Orphan Products (ECRD 2020). Orphanet J Rare Dis 15, 310 (2020). https://doi.org/10.1186/s13023-020-01550-1

Download the OJRD Supplement
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