HULL DONOSI CML ADVOCATES NETWORK NEWSLETTER ZA PROSINAC 2021.

Cronic Myeloid Leukemia Patient Group Advocates

CML Advocates Network, December 2021
 
 
Global Leukemia Patient Experience Survey 2021

We need your collaboration!

Can you please help us share the Global Leukemia Patient Experience Survey with your contacts and patient groups?

If you have a leukemia diagnosis, don't miss the opportunity of joining the global research and contribute to create patient-based evidence in leukemia.

Take part by clicking on the link below, it’s available in 10 languages.
Thank you very much!

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In memoriam of Euzebiusz Jan Dziwinski and Professor Michele Baccarani
It is with deep sadness that we have learnt the passing of two members of the CML global community in December 2021: our friend, colleague, and CML patient advocate Euzebiusz Jan Dziwiński, Vicepresident of the National Association for CML in Poland, and Professor Michele Baccarani, a key leader in Hematology and close friend of our member in Italy, AIL Group of CML patients.
Our most heartfelt condolences go out to their families and friends.
Rest in peace.
 
CML Advocates Network Steering Committee 2021 
We are excited to formally welcome and introduce the three new members of the CML Advocates Network Steering Committee 2021:

  • Zack Pemberton-Whiteley, Chief Executive Officer of Leukaemia Care, United Kingdom. Region Western Europe Representative.
  • Eunice Orekha, President of Max Care Foundation, Nigeria. Region Middle East & Africa Representative.
  • Felipe Tapia, Vicepresident of Maxi Vida Association, Chile. Region Latin America Representative.

Above all, we want to communicate our profound appreciation for the regional representatives at this committee who are stepping down after years of service:

  • Felice Bombaci, Chairman of our member association Gruppo AIL Pazienti Leucemia Mieloide Cronica in Italy.
  • Bahija Gouimi, President of our member association AMAL in Morocco.
  • José Castro, Legal and Scientific Affairs of our member association AGALEMO in Costa Rica. 

Their dedication, acumen, patience, and persistence were instrumental in getting the CML Advocates Network to where it is now. Thank you very much to all of you!

The new representatives now join the three co-founders Jana Pelouchová, Giora Sharf, Jan Geissler, and current representatives Lisa Machado (North America region), Rod Padua (Asia-Pacific region) and Šarūnas Narbutas (Central and Eastern Europe & West Asia region and Chairman of the network) in driving the implementation of the strategies and initiatives of the CML Advocates Network.

 
Very best wishes for a wonderful Holiday Season
and a very Happy New Year!