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HULL DONOSI ECPC Newsletter – Summer Edition!

  An EU Cancer Survivorship Day becoming a reality This year’s webinar ECPC’s event on life after cancer sought to provide an impetus for the formal establishment of an annual EU Cancer Survivorship Day, following the example of several national cancer survivorship days which bring together communities worldwide to recognise survivors and the challenges they face and celebrate life after cancer. The Challenge...

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MPE Report: Assessment of the needs of patient organisations during the COVID-19 pandemic

Assessment of the needs of patient organisations during the COVID-19 pandemic   As the SARS-CoV-2 (COVID-19) pandemic unfolded in 2020, Myeloma Patients Europe (MPE) became aware that the pandemic, as well as the restrictions imposed, were impacting the healthcare and lives of people with myeloma and AL amyloidosis, and their caregivers in multiple ways. The crisis also brought unique challenges to our member...

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HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) SUDJELOVALA NA OBILJEŽAVANJU 10-GODIŠNJICE MYELOMA PATIENTS EUROPE (MPE) I MASTERCLASSU

Hrvatska udruga leukemija i limfomi (HULL) punopravna je članica Myeloma Patients Europe (MPE). Dana 2. srpnja 2021. godine (subota), u vremenu od 13.00-17.00 sati i dana 3. srpnja 2021. godine, u vremenu od 9.00 do 17.00 sati obilježena je 10-godišnjica Myeloma Patients Europe ( MPE) i Masterclass, i to u virtualnom obliku.  Na rečenom obilježavanju je bilo više od 100...

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In the Node July Edition

A MESSAGE FROM LORNA LATEST NEWS & RESEARCH COALITION COMMUNITY TOP ACADEMIC ARTICLES   A Message from Lorna:  Dear Members, 2021 is a still a year of uncertainty as the world continues to navigate through the impact of the pandemic.  What is certain is that we are stronger together.  The theme for the 2021 Global Summit is Innovation, Speed and Flexibility. The...

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HULL DONOSI BILTEN MPN RESOURCH FOUNDATION-A ZA MJESEC LIPANJ 2021. – POGLEDAJTE PREDAVANJE DR. SRĐANA VERSTOVŠEKA

Conference Highlights   Two significant conferences for the oncology and hematology research communities took place this month and each featured important content on MPNs.   At the American Society of Clinical Oncology's (ASCO) 2021 Annual Meeting, the MPN research presented included updates on several significant clinical trials for MF, including SIMPLIFY-1 (Momelotinib, Sierra Oncology) and BOREAS (KRT-232, Kartos Therapeutics). BOREAS is a new phase 3 study designed...

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HULL DONOSI BILTEN UICC-A (UNION FOR INTERNATIONAL CANCER CONTROL) ZA MJESEC LIPANJ

UICC monthly news June 2021 Effective cancer control and Universal Health Coverage go hand-in-hand Five million cancer-related deaths in 2020 might have been avoided with easier and more timely access to health services. In an opinion piece for Project Syndicate, UICC President Prof. Anil D’Cruz explains what actions can be taken to overcome inequities in health care and save lives....

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HRVATSKA UDRUGA LEUKEMIJA i LIMFOMI (HULL) SUDJELOVALA U TV EMISIJI NA MREŽA TV

Dana 5. lipnja 2021. godine članica Upravnog odbora Hrvatske udruge leukemija i limfomi (HULL) Ana Mrčić, prof. psih. sudjelovala je u televizijskoj emisiji “Ključ zdravlja” zagrebačke Mreža TV, u kojoj je govorila o hematološkim bolestima. Snimak emisije možete pogledati ovdje: https://youtu.be/wtcMwMhqZPY Izvor: Mreža TV, Nezavisna televizija d.o.o. Zagreb

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UICC Newsletter – May 2021

  UICC Newsletter May 2021 Antimicrobial resistance (AMR): a major threat to effective cancer treatments As pathogens become ever more resistant to antimicrobial drugs such as antibiotics, people living with cancer run a growing risk of adverse treatment outcomes, including death from an infection, even though their cancer is treatable. UICC is collaborating with members and partners to increase awareness...

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LÖSEV-20. International Week for Children with Leukemia

LÖSEV – Foundation for Children with Leukemia is a non-profit and non-governmental organization which provides medical, financial and psychosocial support to children affected by leukemia and other childhood cancers. We have been providing support to more than 47.000 children with leukemia and cancer, adult cancer patients and their families since 1998. Our primary goal is to provide permanent treatment and...

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EHA 2021 CML updates

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, EHA 2021   26th European Hematology Association Congress Highlights from sessions dedicated to Chronic Myeloid Leukemia Only two weeks left to start the European Hematology Association Congress 2021 from June 9 to 17 and get informed about the highlight state-of-the-art clinical practice, recent advances, new data and views from different stakeholders as well as international organizations.  ...

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#Resolution4Rare: Global campaign for a UN Resolution

eNews: 12.05.21 The Voice of Rare Disease Patients in Europe #Resolution4Rare: Global campaign for the first UN Resolution on Persons Living with a Rare Disease   EURORDIS-Rare Diseases Europe, in collaboration with Rare Diseases International and the NGO Committee for Rare Diseases, has developed a toolkit to support the call for a UN Resolution on Addressing the Challenges of Persons Living with a Rare...

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MDS savez podsjeća sve da su aktivni na sljedećim društvenim mrežama putem kojih ih svi mogu pratiti i saznati novosti

MDS savez podsjeća sve da su aktivni na sljedećim društvenim mrežama putem kojih ih svi mogu pratiti i saznati novosti:   Twitter Facebook LinkedIn Instagram   Tijekom mjeseca svibnja obilježavat će se Međunarodni dan sestrinstva – medicinskih sestara i medicinskih tehničara, Međunarodni dan kliničkih ispitivanja i Svjetski dan borbe protiv raka krvi. Svakako pratite objave.   Lijep pozdrav, Patricija

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Poziv Agencije za lijekove i medicinske proizvode (HALMED) za uključivanje u neintervencijsko ispitivanje o praćenju cjepiva protiv bolesti COVID-19

Poštovani, U nastavku ove e-poruke dostavljamo vam poziv Agencije za lijekove i medicinske proizvode (HALMED) za uključivanje članova udruga pacijenata u neintervencijsko ispitivanje o praćenju cjepiva protiv bolesti COVID-19. Molimo vas da ovaj poziv podijelite sa svojim članstvom i na svojim internetskim stranicama. U svrhu objave ovog poziva na internetskim stranicama, šaljemo vam logotip Agencije za lijekove i medicinske proizvode...