Currently browsing: CML Advocates Network
CML-advocates-network-logo

HULL DONOSI CML ADVOCATES NETWORK NEWSLETTER ZA STUDENI 2021.

U nastavku možete pogledati aktivnosti I novosti u radu međunarodnih asocijacija udruga koje okupljaju oboljele od hematoloških bolesti. Dražen Vincek   For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, November 2021 Watch CML Horizons 2021 videos of all sessions on demand     Global Leukemia Patient Experience Survey 2021 Are you suffering from Leukemia? Take the Global Leukemia Patient Experience Survey...

CML-advocates-network-logo

HULL DONOSI KONAČNO IZVJEŠĆE S CML HORIZONS VIRTUAL CONFERENCE – SVJETSKOG SKUPA PREDSTAVNIKA UDRUGA KOJE OKUPLJAJU OBOLJELE OD KRONIČNE MIJELOIČNE LEUKEMIJE (KML) U SUSTAVU CML ADVOCATES NETWORKA

CML Horizons 2021. u virtualnom obliku privukao je veliko zanimanje s blizu 300 registracija iz 74 zemlje iz svih krajeva svijeta. Program 19. konferencije sastojao se od 3 poludnevna predavanja od 22-24. listopada 2021. godine (petak-nedjelja) sa 150 dnevnih sudionika, a iz svakodnevnih povratnih informacija udruga članica pokazalo se da je ovaj virtualni događaj još jednom bio iznimno uspješan. U...

CML-advocates-network-logo

HULL JE SUDJELOVAO NA 19. SVJETSKOJ KONFERENCIJI CML ADVOCATES NETWORK – MEĐUNARODNOJ KONFERENCIJI UDRUGA KOJE OKUPLJAJU OBOLJELE OD KRONIČNE MIJELOIČNE LEUKEMIJE (KML) – NAGLASCI S TREĆEG DANA KONFERENCIJE DANA 24. LISTOPADA 2021.

For CML Horizons Virtual 2021 Attendees Highlights from Day 3 CML Horizons Virtual Conference 2021 – Day 3   By any standards, the CML Horizons Virtual Conference 2021 was a smashing success. The overwhelming feeling from attendees was that they left better informed, inspired about progress made by many CML patient advocacy organisations and commited to keep on advocating for CML...

CML-advocates-network-logo

HULL JE SUDJELOVAO NA 19. SVJETSKOJ KONFERENCIJI CML ADVOCATES NETWORK – MEĐUNARODNOJ KONFERENCIJI UDRUGA KOJE OKUPLJAJU OBOLJELE OD KRONIČNE MIJELOIČNE LEUKEMIJE (KML) – NAGLASCI S DRUGOG DANA KONFERENCIJE DANA 23. LISTOPADA 2021.

For CML Horizons Virtual 2021 Attendees Join Day 3 Sunday 24th October at 2 PM CET CML Horizons Virtual Conference 2021 – Day 2   Saturday 23rd was a very dynamic day full of insights. We had a great time with 7 keynote speakers and 5 panelists who talked about the CML Advocates Network activities over 2020- 2021 and the challenges faced by CML patients during the coronavirus...

CML-advocates-network-logo

HULL JE SUDJELOVAO NA 19. SVJETSKOJ KONFERENCIJI CML ADVOCATES NETWORK – MEĐUNARODNOJ KONFERENCIJI UDRUGA KOJE OKUPLJAJU OBOLJELE OD KRONIČNE MIJELOIČNE LEUKEMIJE (KML) – NAGLASCI S PRVOG DANA KONFERENCIJE DANA 22. LISTOPADA 2021.

For CML Horizons Virtual 2021 Attendees Join Day 2 Saturday 23rd October at 2 PM CET CML Horizons Virtual Conference 2021 – Day 1   The 19th edition of the CML Horizons Conference started yesterday 22nd October as a virtual event with the participation of almost 300 attendees from 74 countries to this annual meeting of the global CML patient advocacy community. During five hours, registered participants...

CML-advocates-network-logo

EHA 2021 CML updates

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, EHA 2021   26th European Hematology Association Congress Highlights from sessions dedicated to Chronic Myeloid Leukemia Only two weeks left to start the European Hematology Association Congress 2021 from June 9 to 17 and get informed about the highlight state-of-the-art clinical practice, recent advances, new data and views from different stakeholders as well as international organizations.  ...

CML-advocates-network-logo

Living with CML: Jana Pelouchová

  LIVING WITH CML   Patient stories to help better understand  daily life with  Chronic Myeloid Leukemia (CML)     Share Tweet Forward - Jana Pelouchová, co-founder of the CML Advocates Network and President of Diagnoza Leukemie, Czech Republic - My name is Jana and I’m living my 19th year with CML and I’m enjoying it because last Christmas I have reached...

CML-advocates-network-logo

CML Newsletter, February 2021

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, February 2021 More opportunity than risk: "Choosing the optimal therapy is vital for patients"   Although diagnosis and treatment methods for blood cancers have greatly improved in recent years, many are still incurable. For this reason and with the help of 94 partners and members, including seven patient organizations as well as...

CML-advocates-network-logo

“CML-CAB News” – 3rd edition, February 2021

"CML-CAB NEWS" – 3rd edition February 2021   BYE RITA, WELCOME JERRY! End of 2020, our long-standing CML-CAB member Rita O. Christensen (CML patient and Chairman of LyLe – patient group for lymphoma, leukemia and MDS based in Denmark) decided to step down from CML-CAB and other voluntary positions for personal reasons. Rita is an engaged advocate with plenty of...

CML-advocates-network-logo

CML Newsletter, January 2021

  For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, January 2021 ELN Recommendations 2020: patient-friendly summary now in 12 languages!   Download the Patient-friendly Summary of the ELN 2020 CML Treatment Recommendations, available now in 12 languages and more are coming: English, Spanish, Croatian, French, Polish, Romanian, Serbian, Arabic, Hebrew, Czech, German and Russian. We welcome community translations by member organisations of...

CML-advocates-network-logo

CML Newsletter, December 2020

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, December 2020 ELN Recommendations 2020: patient-friendly summary   Download the Patient-friendly Summary of the ELN 2020 CML Treatment Recommendations, available now in 9 languages and more are coming: English, Spanish, Croatian, French, Polish, Romanian, Serbian, Arabic and Hebrew. We welcome community translations by member organisations of CML Advocates Network. If you are interested...

CML-advocates-network-logo

HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI DONOSI PREPORUKE ZA LIJEČENJE OSOBA KOJE ŽIVE S KRONIČNOM MIJELOIČNOM LEUKEMIJOM (KML), NAJNOVIJEG DOKUMENTA IZDANOG OD STRANE CML ADVOCATES NETWORKA (CML AN), I TO NA HRVATSKOM JEZIKU

  Patient-friendly summary of 2020 ELN Guidelines for CML - Published by the CML Advocates Network - The new "European LeukemiaNet 2020 recommendations for treating chronic myeloid leukemia" were published in March 2020 in the prestigious journal Leukemia.   In order to improve the information available to patients and support them to access these guidelines, we have developed once more a patient-friendly summary...

CML-advocates-network-logo

HULL PRENOSI OBAVIJEST CML ADVOCATES NETWORKA

For Chronic Myeloid Leukemia Patient Group Advocates Central and Eastern Europe and West Asia region,   December 2020   CML Atlas East Europe is the final product of East Europe and West Asia regional project run by the CML Advocates Network from 1st December 2019 to 31st March 2020. The activity started with a regional survey reaching our Eastern European patient members...