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EHA 2021 CML updates

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, EHA 2021   26th European Hematology Association Congress Highlights from sessions dedicated to Chronic Myeloid Leukemia Only two weeks left to start the European Hematology Association Congress 2021 from June 9 to 17 and get informed about the highlight state-of-the-art clinical practice, recent advances, new data and views from different stakeholders as well as international organizations.  ...

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#Resolution4Rare: Global campaign for a UN Resolution

eNews: 12.05.21 The Voice of Rare Disease Patients in Europe #Resolution4Rare: Global campaign for the first UN Resolution on Persons Living with a Rare Disease   EURORDIS-Rare Diseases Europe, in collaboration with Rare Diseases International and the NGO Committee for Rare Diseases, has developed a toolkit to support the call for a UN Resolution on Addressing the Challenges of Persons Living with a Rare...

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MPE Newsletter | COVID-19 vaccination for myeloma patients

        The SARS-CoV-2 (COVID-19) pandemic has raised a lot of questions, especially around vaccination. Myeloma Patients Europe (MPE) is working to respond some of the most frequently asked questions about the current approved vaccines in Europe and how they affect myeloma and AL amyloidosis patients. MPE has developed the Q&A “SARS-CoV-2 (COVID-19) Vaccination for Myeloma Patients” to cover the...

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Living with CML: Jana Pelouchová

  LIVING WITH CML   Patient stories to help better understand  daily life with  Chronic Myeloid Leukemia (CML)     Share Tweet Forward - Jana Pelouchová, co-founder of the CML Advocates Network and President of Diagnoza Leukemie, Czech Republic - My name is Jana and I’m living my 19th year with CML and I’m enjoying it because last Christmas I have reached...

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UICC Newsletter – March 2021

          www.uicc.org         Share               Find us on social media   UICC Newsletter March 2021 Mobilising support to reduce inequities and improve outcomes in women's cancers UICC continues to drive efforts to address breast and cervical cancer to help reverse mortality trends and end inequities. Through knowledge...

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CML Newsletter, February 2021

For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, February 2021 More opportunity than risk: "Choosing the optimal therapy is vital for patients"   Although diagnosis and treatment methods for blood cancers have greatly improved in recent years, many are still incurable. For this reason and with the help of 94 partners and members, including seven patient organizations as well as...

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Thank you for being part of an extraordinary day!

  Thank you for being part of an extraordinary day. This 4th February was a day of powerful conversations, incredible support, and tremendous learning and connections. The actions and messages from around the world have been awe-inspiring. We can be proud of the impact that we have achieved together this World Cancer Day:  Over 20,000 media mentions More than 700 activities took place around the...

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Today is World Cancer Day!

  Today, we give voice to our heroes Today on 4th February, World Cancer Day, we give voice and say thank you to the nurses, doctors, researchers, volunteers, advocates and other caregivers in oncology from around the world who have worked these past 12 months through the COVID-19 pandemic. Be inspired by the stories of our community   A message from the CEO of the...

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We’re one day away from World Cancer Day.

  Tomorrow is World Cancer Day. Supporters, schools, businesses, communities and cities are all coming together united against cancer. Join us and show your support for the global cancer community.    Watch LIVE In 2021, we're bringing World Cancer Day to you. Starting at 9am CET across 12 hours, we're streaming live from Facebook. Tune into chats with experts from around the...

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“CML-CAB News” – 3rd edition, February 2021

"CML-CAB NEWS" – 3rd edition February 2021   BYE RITA, WELCOME JERRY! End of 2020, our long-standing CML-CAB member Rita O. Christensen (CML patient and Chairman of LyLe – patient group for lymphoma, leukemia and MDS based in Denmark) decided to step down from CML-CAB and other voluntary positions for personal reasons. Rita is an engaged advocate with plenty of...

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UICC Newsletter January 2021 – Celebrating the heroes working in cancer

  UICC Newsletter January 2021 Celebrating the heroes working in cancer   For World Cancer Day, UICC shares the stories of and thanks the nurses, doctors, researchers, volunteers, advocates and other caregivers in oncology from around the world for their tireless work these past 12 months. Read more World Cancer Day LIVE This 4th February, UICC is bringing World Cancer...

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UICC Newsletter – January 202

          www.uicc.org         Share               Find us on social media           UICC Newsletter January 2021 Celebrating the heroes working in cancer   For World Cancer Day, UICC shares the stories of and thanks the nurses, doctors, researchers, volunteers, advocates and other caregivers in...

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CML Newsletter, January 2021

  For Chronic Myeloid Leukemia Patient Group Advocates CML Advocates Network, January 2021 ELN Recommendations 2020: patient-friendly summary now in 12 languages!   Download the Patient-friendly Summary of the ELN 2020 CML Treatment Recommendations, available now in 12 languages and more are coming: English, Spanish, Croatian, French, Polish, Romanian, Serbian, Arabic, Hebrew, Czech, German and Russian. We welcome community translations by member organisations of...