EURORDIS-Rare Diseases Europe, in collaboration with Rare Diseases International and the NGO Committee for Rare Diseases, has developed a toolkit to support the call for a UN Resolution on Addressing the Challenges of Persons Living with a Rare Disease and their Families.
Vulnerability, exclusion and inequity are the reason why the challenges of people with rare diseases need to be positioned as a human rights issue and addressed by the international community at the global level.
To ensure the adoption of the UN General Assembly Resolution, the global rare disease community needs to come together and advocate for change at the local, national and international levels.
This publication (or activity) has been funded with support from the European Union's Health Programme. This material only reflects the views of the author, and funders cannot be held responsible for any use which may be made of the information contained herein.