HULL JE SUDJELOVAO NA 19. SVJETSKOJ KONFERENCIJI CML ADVOCATES NETWORK – MEĐUNARODNOJ KONFERENCIJI UDRUGA KOJE OKUPLJAJU OBOLJELE OD KRONIČNE MIJELOIČNE LEUKEMIJE (KML) – NAGLASCI S PRVOG DANA KONFERENCIJE DANA 22. LISTOPADA 2021.

For CML Horizons Virtual 2021 Attendees

Join Day 2 Saturday 23rd October at 2 PM CET

CML Horizons Virtual Conference 2021 – Day 1

 

The 19th edition of the CML Horizons Conference started yesterday 22nd October as a virtual event with the participation of almost 300 attendees from 74 countries to this annual meeting of the global CML patient advocacy community.

During five hours, registered participants enjoyed two interesting Day 1 sessions learning from the world's leading experts in the CML field.

Thank you for your engagement and amazing CML advocacy to all of you!
 
 
CML 101
CML 101 was an introductory session of the conference about the basics on CML  at a beginner's level that are really important for new attendees but also for old members to remind key concepts and updates.

The session was efficiently run by Jerry Clements, founder of the CML Buster Foundation, USA.

 
Opening & Update
 
The Opening was held by the CML Advocates Network co-chair Sarunas Narbutas, taking great pride in welcoming all the attendees, followed by the Executive Director, Denis Costello, presenting a short update of the network's achievement in the past year, important projects and basic data of the CML global patient advocacy activity.

This session ended with a touching tribute to all the CML patient advocates worldwide who have lost their lives in 2020-2021.

 
Medical #1: Covid 19 impact on CML & Patient groups
The Medical #1: Covid 19 impact on CML & Patient groups session offered attendees four exciting presentations run by these key CML experts:

"The pandemic’s impact on CML (treatment access, care & Vaccines)" by Dr. Katia Pagnano.
"Impact on patient organisations case studies", with the following three case studies:
1. Online seminar series “Knowledge horizons – current perspectives on living with CML” – LeukaNET e.V., Germany, by Cornelia Borowczak.
2. Managing our CML during the times of COVID-19 – Friends of Max, India by Dr. Aashray Paul, and finally, 
3. COVID-19 Affects Comprehensive CML Care in Northeast Colombia – Fundación Esperanza Viva, presented by Oscar Alberti on behalf of Nury Esperanza Villalba Suárez.

 
Medical #2: The future of CML
At Medical #2 session, three CML haematology leaders were presenting on the following important topics:
  • Update on asciminib (access, etc) by Dr. Andreas Hochhaus.
  • Other new drugs & New clinical trials? with Dr. Tim Hughes.
  • TFR: still a good option for patients? (incl 2nd TFR) by Dr. Kendra Sweet.
After the three talks, chairs Jan Geissler and Eunice Orekha open a empowering discussion about the most important concerns of CML patients and speakers were answering a long list of questions coming from the audience.

Please, click below to check interesting questions from the audience and answers kindly provided by Dr. Andreas Hochhaus during Medical #2 session.

DISCUSSION AND AUDIENCE Q&A
 
CML Horizons Polls
In order to better engage the audience and also include the attendees perspective during the meeting, this year we have implemented during the congress an interactive tool to collect patient advocates' views and make them part of the live conversation by answering short polls.
 
Networking Lounge
The training day finished with an informal meeting joined by a large number of patient advocates to meet colleagues, friends and share greetings.
 
Have a look at Day 2 Agenda
 
Looking forward to seeing you all today at #CMLHZ21 Day 2!